Listen to the Article When skin is as delicate as a butterfly’s wing, life’s simplest acts—a handshake, a hug, or a stroll down the street—can feel like climbing Everest barefoot. This is the raw reality of living with epidermolysis bullosa (EB), a rare genetic condition where the skin’s layers refuse to stick together, making them […]
No one should navigate the pain of EB alone: Debra Ireland is here Read More »
By Marcia Frost Shane Burcaw and his cousin, Sarah Burcaw, founders of non-profit, Laughing at My Nightmare (LAMN) Listen to this Article Activist and influencer Shane Burcaw is probably best known for his social media following of nearly two million. Squirmy & Grubs, as he and wife Hannah refer to themselves, shares the couple’s life
Laughing At My Nightmare Offers Emergency Relief Read More »
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